Pediatric Crohn's Disease: A little About My
ExperienceWhen I was first diagnosed I was 11 years old, which
would qualify as pediatric Crohn’s Disease, I really wasn’t that well equipped to deal
with what was about to happen to me in the next few years.
If I could go back in time and give myself some of the tools that I know about now to
help me deal with the situation I was in, I would have got on much better even though the situation would not have
I was lucky that I went to a small country school, because I knew everyone really
well there wasn’t really too much of an issue with letting people know that I had Crohn’s Disease or being
Even though I was pretty sure when I stood up in front of my class to tell them that
I had Crohn’s it would be well received, there was still a part of me that was terrified and wanted to run the
other way as fast as I could.
There are many challenges that children with Crohn’s Disease face that are never an
issue for children without Crohn’s. A major thing issue that I was dealing with at the time was how to get used to
not having many people around my own age. Not being at school a lot made the days long and quite lonely.
As I missed about 50% of my schooling around this time due to pediatric Crohn’s Disease, it left me with a lot of time
at home with not really much to do. One of the things that I found really helped me was to keep busy with something
hobbies, going for a walk, going around the farm with Dad as well as computer games to name a few.
It was something to take my mind off the pain and giving me some else to focus on
other than being sick all the time. We ended up getting a pet dog, a golden Labrador. He was a great friend to me
through those times and was also company when there was no one else around due to work commitments and other such
I was in and in out of depression a lot at this time in my life, it wouldn’t be till
later on that I would find the things I needed to be able to help bring me out of that state and be more balanced
Things such as meditation have really made a great difference in my life to help me
cope with having Crohn’s Disease when I was really sick. Having Crohn’s Disease make me grow up a lot
faster and be more mature for my age than I may have otherwise been, but that has been a good thing long
One of the most important things for me when I was younger and sick with Crohn’s was
the love of my family and all the help/support they gave me. Without the help of my family I don’t know how I would
have got through those times.
Another thing I found to be good was to connect with people that are going through
the same thing I was. Getting in contact with your local Crohn’s Disease/Ulcerative Colitis/IBD support
group can help with this.
You can also find out about the larger national groups such as the Crohn's and Colitis Foundation of America (CCFA) which will have larger
memberships and more people your own age that you can relate to.
Being able to talk to someone that is in the same situation if you have
pediatric Crohn’s Disease makes it much easier to deal with, it helps knowing that you are
not the only one in the world that is going through this and that you are not alone.